Rhett's diagnoses

Try this: Turn on the radio, then turn it up as loud as it will go. Until it hurts your ears. Put 150 watt light bulbs in every lamp in one room, and turn them all on. Put on a pair of pants backwards and somebody else's shoes that are too small. Shove a stiff hairbrush down the back of your shirt, so it is poking at you, and driving you crazy. Now clean the kitty litter, change the dirty baby diaper, or scoop up the dog mess in the yard, and sit it square in the middle of the table, so it wafts. Sit at your table with a food you absolutely gag on, in a chair with one leg missing. Now, snack on that food you hate. How many seconds can you stand the music that loud? The lights so bright? Those shoes so tight? And what is that smell!? Imagine if you cannot stop this. Cannot have a moment, ever, without feeling like you do right now.

Now imagine you are just a little kid, who does not know that it isn't like this for everybody. Now, imagine you are an adult who has no idea why they feel this way.


Ever wonder why your child is the way they are? I have wondered about Rhett since he was 6 months old. Why my son never wanted me to leave his sight, why my son never cried during shots, why my son wasnt sitting up or looking at people. Why my son literally had to be beat to burp, why he had such stomach issues. At 3 weeks we went to eat at El Chicos and my husband went to change him on the floor with our changing pad. Rhett lifted his head and smashed it into concrete, he whimpered but never cried. This is a newborns fragile head and it didnt phase him. ER said he was fine no marks no damage, just watch him. At 2 months he got his shots and never even made a sound the nurse said it was cause he had a paci in his mouth. 4 and 6 months were the same way, at a year he got his finger pricked got mad at the lady for touching him but never cried when she stuck him. Rhett always cried when my mother in law came near him. It was only her. Everyone else he didnt have a problem with. My husband could never keep him until recently. No one could. I was told my son is spoiled needs a spanking needs me to put him down needs me to tell him no, but turns out he needed me. At 1 year he wasnt showing any interest in walking, he took his first step at 10 months, then didnt even try until he was 14 months old. Rhett said mama at 6 months but his vocabulary is now only about 20 words. He uses his words that he does know to make sentences but not like the other 2 year olds i know. At 2 i asked if he was behind was told since there r so many siblings its just harder for him to talk everyone does it for him. On Christmas Eve he laid himself out and never cried had a bruise within 5 minutes across his throat where he clotheslined but was more upset he got slowed down than the fact he was hurt. Hes got a high pain tolerance i was told, and they r right.
March 18th Rhett was diagnosed with a neurological disorder called spd: sensory processing disorder. It is genetic and regarding my husband was probably passed from his side. Spd explained everything all the way down to the issue with my mother in law her voice literally was hurting his ears. By the time it processed to his brain it was worse than it is. Raising my voice scares him, he cant go to daycare unless its one specialized in this. he requires constant attention for he might climb and jump or break a bone without even noticing. Every fall is a physical for him we have to check everything to make sure nothings broke he might not even notice. He might not potty train for a while becuz he cant realize the urge. It scares the crap out of me. What scares me more is that there is no cure that he might not ever "function" like he should or that he will be made fun of because hes different. People r so cruel. And im not even talking about school kids i'm talking about family too. Im thankful my family has been so supportive of RHETT. I know he doesnt talk like the other kids in the family, I know he doesnt act like the other kids in the family. But its not his fault he cant help it.AND i know he might not ever get to be a part of things like i want but my son is the most loving child ever. and that i will always be so thankful for. Hes got the love down. This has been the most trying time i have ever experienced in my whole life. But now that i know what we have to do rhett is gonna be the best he can be. And i swear if i find out people r talking about my son and its not in a good way i will rip faces off. Im not making fun of anyones kids and i dont care if its ever a playful thing if its a joke or not i will react like its war. if theres an urge to make fun of someone make fun of me call me names do whatever but my son and all my kids r off limits.